FACST Represented at FANN's Leaders Summit and FAAN Conference in Chicago
I was honored to be invited to FAAN's 3rd Annual Leaders Summit held on March 30th followed by the FAAN's 19th Annual Conference on March 31. The Leaders Summit was filled with useful information and valuable training. The Summit was kicked off by the poignant Sara Shannon, sharing the inspirational story of her daughter's tragic death and her struggle to keep others safe. Other speakers included a representative from Mylan (formerly Dey) the makers of Epi Pens and Gwen Smith, the editor of Allergic Living Magazine. Following the presentations, support group leaders and FAAN walk chairs broke apart to address issues to help volunteers reach their goals. This Food Allergy Conference's theme was "Because I Love Someone With Food Allergies." Sessions included "Food Allergy & Anaphylaxis Management" and "The Latest in Research" with Dr. Todd Mahr, "Advocating for Your Child" with Eleanor Garrow, Gina Clowes and Nicloe Smith, "Adults Living with Food Allergies" and "Allergic Girl" Sloane Miller, Nurse Training, Parents Enduring Bullying from Peers and School Personnel with Kristen Kauke, "Advocacy: School Access to Emergency Epinephrine Act" with Dr. Chris Weiss and my personal favorite "Allergy Free Food Preparation Workshop" with Kelly Rudnicki the Food Allergy Mama. At the same time, FAAN held their Teen Summit where kids with food allergies were able to learn and hang out and express themselves with others with FA.
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Come Meet KC's FAAN Walk Chair Catherine Stewart!!!
Join us for FACST's May meeting, May 1, 7pm at Spin Pizza in Lee's Summit to meet Catherine Stewart, Kansas City's FAAN Walk Chair. Find out all the details of this year's walk including all the wonderful prizes and goodies available for you! This is an exciting event for food allergy families from all over KC to get together, meet, and raise funds for FAAN.
Of course FACST will be forming a team again this year. Last year, we were the team who raised the most amount of money, winning a fabulous prize package from Enjoy Life Foods- YUM!!! Consider joining us or making your own team.
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A Great Big, Heartfelt 'Thank You' to the Members Who Support FACST!
Beginning in February, FACST started meeting at Spin Pizza in Lee's Summit. We have been welcomed by their warm staff and enjoyed great service. Although our numbers have been small, we've had a great time sharing, snacking and sipping!
Starting in April, we will be adding a new service of a book request from our lending library. Since we are now in a new location, the entire library will no longer be available at each meeting. Instead, we will list all titles available on the website and you may request items to be delivered at the up-comming meeting. Members may borrow items until the following meeting.
Our hearts go out to the Johnson family and all those who
loved Amarria.
No doubt, you have read about the latest food allergy victim, 7 year-old Amarria Johnson. If not, click here. She died after ingesting a peanut given to her by a classmate and NOT receiving epinephrine from her school nurse. So many lessons from this tragic story.
There must be clear communication between allergist and patient regarding the importance and life -saving properties of the correct usage of epinephrine.
There must be clear communication between parents of food allergic parents and the schools regarding following a doctor approved food allergy action plan.
Parents must provide the schools with (and schools must accept) up to date medical records and medications.
All school personnel must be trained on how to avoid allergens, recognize a reaction and put an emergency plan into action- quickly.
Schools must have stock epinephrine on hand. Epi’s must be available in a case where a parent has not provided medication, provided medication has expired, the provided device has malfunctioned, or there is a previously undiagnosed reaction (25% of 1st time reactions occur in schools).
Most of these points have been explored in the press and on various food allergy message boards and websites. One point that I think needs to be addressed is the education not only of food allergy families and school staff, but also educating the classmates of food allergic students.
I know many parents do not want to draw attention to their child being different. But guess what- THEY ARE DIFFERENT! Personally, I would want a life size poster of my child wearing a t-shirt that reads “I Have Food Allergies!” displayed in his school. Students know who the “peanut” kid is. They are not fooled. That is not the problem. The problem is when people have the attitude that being different equals being wrong or bad. Sure our kids want to fit in- everyone does. But the flip side of that idea is that although everyone wants to fit in, everyone is unique and has their own strengths and weaknesses, talents and struggles. Perhaps if Amarria’s classmate was educated about the dangers of food allergies, this would have not only avoided a needless death , but it may have spared her pain as well. This child must now live with a mistake that an adult made by not educating her.
Speak up. Volunteer to read a book about food allergy to your child’s class, give Alexander the Elephant stickers or coloring pages to your child’s teacher to share, download the Be a PAL program from FAAN, talk to your school’s PTA, set up an info table or take part in other FAAN activities for Food Allergy Awareness Week. There are plenty of ideas at FAAN. Also check out our kids’ section- there are some great videos, activities, and games for kids!!! FACST also has a lending library- (we own most of the Alexander series) come to a meeting and check one out!
Books Available at your local library
"What's up with Paulina?" : medikidz explain food allergies by Kim Chilman-Blair
The princess and the peanut allergy by Wendy McClure
Horace and Morris say cheese (which makes Dolores sneeze!) by James Howe The peanut-free café by Gloria Koster
The peanut pickle : a story about peanut allergy by Jessica Ureel
Beginning February 7th, FACST will have a new meeting place, day and time!!!! We will now meet at SPIN! Pizza, 1808 NW Chipman Rd in Lee’s Summit, on the first Tuesday of the month at 7pm. We hope that this more casual atmosphere will increase participation by helping members feel more comfortable. Although ordering food is not mandatory, SPIN! offers a variety of allergen free choices including wheat/gluten free crusts, dairy& egg free crusts, dairy free cheese. These meetings will be for adults only- lap babies welcome.
FACST wants to sincerely thank Truman Medical Center Lakewood for their generous support in letting us use their meeting space. We will continue to use their facilities for future events when needed. We look forward to continuing working with the nice folks at TMC Lakewood!
February’s Topic: FACST agenda for 2012-What would you like covered?
Come with ideas, questions and concerns. See you then!!!
Happy Holidays from FACST
Click here for a free holiday ecard from FAAN to share with friends and family.
Enjoy these free holiday guides from Kids with Food Allergies:
It is the season when we take the time to stop and consider the people and things for which we are thankful.
For me, I am thankful for my family and friends, a relatively reaction free year, the opportunity to bring food allergy training to more organizations and the chance to help and get to know some of the wonderful families of FACST.
It is my most sincere hope that all of you have a most tasty, satisfying and safe Thanksgiving! -Cheers! Here are some tips for celebrating complied from Gina Clowes Kids With Food Allergies and- Enjoy!
FROM KIDS WITH FOOD ALLERGIES- Thanksgiving Survival Tips Thanksgiving is a holiday in the United States notable for overindulging on a large spread of traditionally prepared foods, many of which are laced with wheat, eggs, milk and other allergenic ingredients. A perfect holiday for many Americans includes eating a butter-basted turkey, creamy mashed potatoes, traditional bread stuffing and Grandma’s pumpkin pie - followed by leaving the table stuffed, loosening one’s belt, and then falling asleep in front of a football game on the TV. Holidays like Thanksgiving that revolve around food can truly be challenges for families raising children with food allergies. The traditional meal for your family can present numerous allergy risks -- and the risks can be even greater if you are not preparing the meal yourself but relying on someone else to cook the meal. Is there any way around the stress and pressure of a holiday known for allergen-laden foods? Or can the foods be made safe for your food-allergic kids? Additional Tips for Surviving the Holiday Season Download KFA's free PDF booklet, Celebrating Thanksgiving with Food Allergies to find 12 food-free Thanksgiving craft and activities, strategies for making dinner and school safe and more!
There are different approaches to this challenge, including:
Preparing the entire meal yourself at your home using safe ingredients.
Helping family prepare the meal at their homes using safe ingredients.
Preparing a safe meal for your child while letting the rest of your family enjoy their traditional favorites.
Your challenge is to decide what is right for your family and safe for your child. Another approach to enjoying the holiday is to take the emphasis off food, and focus on other safe activities your whole family can enjoy together. Don't be afraid to try new things with your family. Play your own football game. Volunteer to serve a meal at a homeless shelter (if your kids are old enough not to eat the food, of course!). Visit a state park. Take a walk in the woods. Play a board game, or start making some Christmas presents together. Whatever you do - eat until you can't move, or stay away from the typical food altogether, or somewhere in between - have a happy Thanksgiving!
FROM GINA CLOWES-
Top 10 Expert Holiday Tips! Thank you to all of my friends who responded so quickly to my request for tips for managing the holidays with food allergies. Here are the tips. (In alphabetical order by last name.) ~ Gina Clowes
Safe Stash! With so many holiday parties and the chaos of all the festivities, we know that not all of the celebrations at others' homes will have safe treats for our oldest daughter, Nina, who is anaphylactic to peanuts. So, we take matters into our own hands (and I freely use the collective "we" here, but if I were being more precise I'd say two wonderful grandmas!) by baking lots of safe cookies and cupcakes and keeping a stash frozen and ready to go at a moments notice so that we always have yummy, decorative, delicious treats that are "Nina safe". Maria Acebal The Food Allergy & Anaphylaxis Network (FAAN)
To Tree or Not to Tree Christmas trees can trigger allergy symptoms so choose carefully. Live trees harbor dust, mold, and pollen. Most are sprayed with pesticides, although organic Christmas tree farms are available in many states. If you opt for a live tree, cut it down yourself. Trees cut months beforehand contain even more mold. Spray the tree down with a hose. Allow it to dry completely, before bringing it indoors. Artificial trees can also harbor dust and mold, and are often made from PVC, a chemical concoction that contains lead. If you do choose an artificial tree, store it in an airtight container. Rinse or wipe it down before use and avoid pine- scented sprays, which can also trigger allergy symptoms. Gina Clowes AllergyMoms.com
Wash and Learn Always wash hands before eating, but be careful of luxury hand soaps and lotions when visiting friends and relatives, as many contain sweet almond oil, walnut shells, or shea (a nut). You could send your children to wash their hands before eating, and find that in fact their allergen is now on their hands! And, watch out for Holiday centerpieces, as they often contain chestnuts, acorns, or other nuts as decorations. Elizabeth Goldenberg Onespot Allergy
Now We're Cookin' Create a set of new traditional recipes that are allergy safe. Not eating Pecan Pie is better than ending up in the emergency room! Have fun finding your own recipes with allergy safe ingredients. Bring your own food if necessary. If you are travelling to someone's home, be very careful. This is one holiday where I never trust someone else's cooking. There are too many side dishes, desserts and other goodies flying about in the frenzy of preparing holiday dinners. I bring my own food or double check all ingredients, labels and utensil sharing before I eat. Don't assume the food doesn't have allergens. Double and triple check always before eating anyone else's cooking. Elizabeth Hamilton-Guarino Best Ever You Network
Nice Booty! I routinely buy the Chanukah gelt (chocolate coins) for the Chanukah celebration at my son's school and for our own Chanukah party. (It is a secular school and they feature different holiday traditions.) Most brands of chocolate coins are not nut safe. A lot of research and legwork a couple of years ago led me to a Dutch brand called Paskesz. They make milk chocolate and dark chocolate coins (the dark chocolate are dairy free also). And they taste great! (Available through Peanut Free Planet.) Jennifer Jobrack Food Allergy Initiative (FAI)
Just Desserts Bring a safe dessert. Desserts are one of the top foods known to cause allergic reactions, so don't chance it. It may seem like a lot of work but honing your dessert-making skills is a must if you're a nut allergy caregiver. Also, everyone loves desserts, so if you make a good one you'll be one of the "heroes" of the dinner! Another thing I plan to do this year is give each child a chocolate turkey from Vermont Nut-Free Chocolate. A way to promote awareness, yes, but also a way to include your child and impress their cousins with a delicious treat. If chocolate is out of reach for you due to other allergies, any little "extra," whether a safe candy or even Thanksgiving-themed pencils, helps your child feel like they brought something special to the party and helps them cope with having to avoid certain foods. Jenny Kales The Nut-Free Mom
Take Food Allergies Off of the Table! Keep your focus on the focus of the occasion. Holidays are about family, connections and togetherness - food is merely a vehicle for that. Do whatever you need to do to keep yourself or your loved ones safe and take food allergies off the holiday table. Sloane Miller AllergicGirl.com
Handle with Care Be sensitive to the feelings of those with food allergies, and know when it is okay to speak openly about them. While we always mean well as parents, often we don't realize that we are actually hurting our child's feelings as we are defining them to others through our discussions about food allergies. Be aware of your child's comfort with where he is with his food allergies as you publicly discuss them. The topic of food allergies really should not be the center of discussions at most family meals, activities, dinners out, and holiday parties. Lori Sandler Divvies
Wine not? If guests want to contribute to the party, suggest flowers, wine, or Holiday-themed napkins and plates instead of food items. If a guest brings a food item that contains allergens, if it's well-sealed, graciously accept it and, if feasible, donate it later to a friend or a soup kitchen. If you are an allergic guest always let your host (or restaurant where you're celebrating) know in advance - don't assume they will know or remember, and always bring your own medication (and up-to-date auto injector) in case of emergency. Mireille Schwartz Bay Area Allergy Advisory Board
Make a New Plan Make the holidays about fun and start a new ritual! Food isn't the only way to celebrate. Plan for snowball fights, board games, hikes and storytelling. Enjoy one another! Make food be less of the focal point of the day. Nicole Smith AllergicChild.com
Some New Food Allergy Websites
Here's an email I recieved for Mas Alex Products- "We started MadAlexProducts.com because we wanted life to be a little easier for our family and others like ours. Many of our team have food allergies and intolerances themselves and/or children with food allergies, so we truly understand the difficulties involved in finding the things that families with food allergies need.
To introduce our website to your support group, we are offering a coupon for 10% off orders from now through November 14th. To receive this discount, enter the following in the Promo Code field: PARENTGRP" Mad Alex Products
And one from Allerkids- "We are two moms and Clinical Psychologists who have created an ecommerce business dedicated to providing smart, stylish, and safe solutions for families with food allergies. Our website is: www.Allerkids.com. We'd like to offer you and the members of your Food Allergy support group a coupon code for 20% off of any order. Just use the following code at checkout: AKSUPPORT2011"
Have a SAFE and Happy Halloween!!
Here are a few Halloween Websites to help your family celebrate with fun and safe tricks and treats!
Instead of our regular meeting for the month of November, I will be presenting along with AAFA of KC at Parents University. I will be bringing our message to parents who are looking for information. Here is the brochure and link to Lees Summit Cares find more information. Please join us.
From our Friends at AAFA-KC
Recipe For Giving
Saturday, November 12, 2011
Our exciting new fundraising event, Recipe For Giving is around the corner! Mark your calendars and purchase your tickets today!
Where: 1900 Stratford, Mission Hills, KS, 66208
When: Saturday, November 12, 2011 from 7-10pm
Cost: $75 per ticket *Sponsorships also available.
For more information, please contact Melissa Bondon at (816) 333-6608.
Looking forward to seeing you there, The AAFA-KC Teamwww.aafakc.org 816.333.6608
New Page Filled With Tools for You! Coming Soon
The page formally known as "News" will now answer to the name of "Training, Tools and News". Recently, several great website have popped up for the food allergy community. These can be used to find safe foods, safe restaurants, train yourself, your family or your school. As more sites, apps and tools emerge, we will post them here for you to have easy access. Also, if you find any resources you'd like to share, click here to email us and we will post them here.
FACST will soon add a contact box where you can sign up for training sessions for your school, preschool, Sunday school, PTA, scout troop etc. Our training program has quadrupled in recent months and we want others to know how they can participate!
Mark Your Calendars for Parent University in November
Coming in November, instead of our regular meeting FACST will be participating in Parents University workshops for parents from Lees Summit Cares. More info to come.
Sign up For Our Final Event of the Year!
The First Annual Fall Food Allergy Family Camp Out will be here soon- Sign Up Now to Join in the Fun!
Tired of always being the only family who has to bring their own food? Well, here's your chance to blend in! The beauty of camping is that we will ALL bring our own food!
Bring your tent and cooler because on Oct 8-9 we will be camping over night (you are welcome to join in and leave when you like) at the campgrounds Lake Jacomo. We will set up camp Sat morning at 10 am, go for a hike, have a scavenger hunt and eat a home sack lunch at the South Boat Dock. Enjoy fishing (remember your license if you're between16 & 65 ) and feeding the geese from the dock. The afternoon will be filled with outdoor games- badminton, croquet, Frisbee, horseshoes and whatever else you can bring. In the evening, we will have a bon fire to roast weenies. Bring whatever weenie (turkey, tofu, beef etc) is appropriate for your family! We will watch a kid's movie on a tent and then hit the sack!
This will be the only posting for this event. A minimum of five families is needed to make this event happen. The deadline for sign up is September 19. Deadline for payment is September 26. The cost is $16 per family for the campground reservation. Once you have signed up, FACST will make the reservations and you will be contacted regarding payment.
ANOTHER Extra Special Thank You to Kneaded Specialties
Our wonderful friends at Kneaded Specialties generously donated the yummiest wheat free, dairy free, egg free, peanut and tree nut free, gluten free, casein free chocolate banana muffins!!! Boy, how much better can it get? Those muffins really got our team ready to walk. If you are looking for a safe and delicious treat, please give Sherri a call. Click here to check out their website to find a location that sells these fantastic treats!!!
Congratulations to Team FACST- Winner of The Top Earning Team at the 2011 FAAN Walk
It was a gorgeous day at Shawnee Mission's Theater in the Park- and a perfect setting for the 2011 KC FAAN Walk. The walk featured a bounce house, craft table and a fire truck for the kids as well as great free goodies from Dey Pharma/Epi Pens, Sunbutter and Enjoy Life Foods. Team FACST was honored as the top walk team, winning a $250 prize package from Enjoy Life foods to be shared by the FACST walkers- The Albert Family, The Dawson Family, The Hawkins Family and the Stump Family. Team FACST surpassed their goal of $1,000 and raised over $1500- and counting! The KC FAAN Walk raised nearly $10,000. Remember you can contribute any time, so you can still send in those tax deductible checks to faanwalk.org.
Thank you to Team FACST, Thank You to those of you who took part in the FAAN Walk, Thank You to those of you who donated to the FAAN Walk!
A great big- THANK YOU!
Thanks to the members who attended the IHP's/504's for Dummies Workshop! And an even bigger THANK YOU for Georgia Mueller from MPACT for sharing a great presentation and her knowledge and expertise!
Join Team FACST and Win a Prize!
click picture for a link to Acrivaide
FAAN Walk participants who join Team FACST will be entered into a drawing to win a product from Activeaide! Australian company, Activeaide, is trying to break into the US market by sharing their incredible products with us. Over $200 worth of prizes!!! They have sent the following products:
9-10-11 -Sound Familiar? That's the date of this year's FAAN Walk!
Dust off those walking shoes and join Team FACST! It's so easy- click here to go to the FAAN Walk website and join our team, create your own or walk as an individual. Help show our hometown pride and raise money for food allergy awareness and to help find a cure!
Also, The KC FAAN Walk Chair, Amy Gregory is looking for volunteers. Contact her at amy@netinn.com
IHP’s and 504’s for Dummies Knowing Your Legal Rights in the Classroom Learn About Your Child’s Rights. You Are Your Child’s Best Advocate.
Do you need a written food allergy plan beyond administering an epi?
Have you been told you don’t need a plan or that you don’t qualify for a plan?
Have you had a situation where a teacher won’t comply with your child’s plan?
Have you been told an IHP is "just as good as" a Section 504?
Do you know what type of FA training your child’s teacher has had?
Have you had conflicts with room mothers or teachers regarding keeping your child safe AND included during parties, birthdays or fieldtrips?
Do you know where your child’s epi is kept? Do you know the law regarding where an epi can be kept?
Do you feel your child is safe at all times? In the classroom? In the lunchroom? During parties or fieldtrips?
Have you asked your doctor about recommended classroom accommodations?
Do you know what question s to ask your doctor that will help your child get the most out of their legal rights?
If you are looking for answers, come to our workshop and learn about what the Department of Education says about these issues. Find out about steps you can take to protect your child. Get to know the lingo and the laws.
The next time there is a Halloween party or substitute teacher, don’t wring your hands, be prepared! Build an alliance between yourself, your doctor and your school to have a plan in place to keep your child safe.
It Is Your Child’s Right! It Is Your Responsibility! It Is the School’s Obligation!
FACST- Keeping kids safe and parents sane.
Time to Get Ready For School
"IHP's/504's for Dummies" August 13th 10-12 TMC Lakewwood Truman Rm #2 At the beginning of this month, the state of Missouri requires all of it's districts to have a food allergy policy in place. Go to your district's website to find out more information.
If you have questions about your child's rights or questions about how the law effects you or your school district, this is the workshop you don't want to miss!!!!
It's Fun, It's Free, It's Informative! Get Involved!!!
Update to the Update!
Our Hero!!! Georgia Mueller has heard our cry and she is to the rescue!
When Georgia Mueller from MPACT heard that we had lost our speaker for the "IHP's/504's for Dummies" workshop(see details below), she graciously offered to present. MPACT is "a statewide parent training and information center that serves parents of children with all disabilities." Speaking from personal experience, I have attended one of her presentations and she is phenomenal. This is a real treat to have her share her legal insight. If you've got kids in school, or will be soon, I urge you to attend.
Georgia Mueller has been the Western Regional Trainer for MPACT - Missouri Parents Act for 6 years. She worked in the advocacy field initially, on behalf of her 12 year old son who has a large variety of specific dietary needs as part of his autism. Caleb's needs require a thorough understanding of how the education, disability and medical rights and systems are intended to work together to support people.
She will be presenting Special Education Rights: What You Need To Know -This training helps you to understand the many aspects of obtaining access to the education your special needs child is entitled to including rights covered by IDEA, ADA and 504.
Plenty of time will be allocated to your specific questions and answers.
Sign Up Early for FACST's Food & Nutrition Symposium!
Have you ever wondered how to make your dining experience safer? Want to know what precautions are taken in the school cafeteria? Curious about great places to get healthy and safe food that tastes great? Join us to get answers to your questions!
July 23 (note date change!!!) 10-12pm, at Truman Med. Center Lakewood, we will be hosting FACST's first Food and Nutrition Symposium!!! Come listen to our guest speakers from a variety of backgrounds share their expertise.
Here's more information about our speakers: Angie Knight, M.A., CCC-SLP- Co-founder of Marian Hope Center for Children's Therapy and speech-language pathologist that works with children with special needs. Angie guides families to support each other as they uncover good nutrition and supplements that can help improve focus, attention, behaviors, sensory processing auditory comprehension and speech development. Angie has been providing nutritional education/training services to children, families and professionals for over 14 years.
Bob Perkins- one of the owners of Nature's Pantry Market in Independence Missouri which started in 1995. Having become very familiar with the gluten free lifestyle since his oldest daughter was diagnosed with Celiac in 2006. Bob is eager to share his knowledge and research on the topic, along with helping you make the switch to a gluten free lifestyle.
Kathy Stump- writer, reviews family restaurants for FACST of KC, checking out local eateries to find how allergen savvy and safe they are. She has a food allergic son and has been writing about food allergy for several years. You can see more of her work at Suite101.com and KCparent magazine. Please check out her review on the Reviews, Recipes & Tips page!
Lori Danella, SNS Nutrition Services Coordinator, Lees Summit R-7 Lori holds a bachelor's degree in Nutrition from DePaul University and is a School Nutrition Specialist (SNS) through the School Nutrition Association. Employed by the Lee's Summit School District as a Nutrition Coordinator, Lori works with over 300 families that have children with allergies and special dietary needs ranging from Celiac to PKU. She is a member and officer of the Jackson County School Nutrition Association, ADA, Weighing In, and Missouri Brain Injury Association and has been employed in School Nutrition for 13 years.
Sherri McGarrah owner of Kneaded Specialties Bakery "I wanted to start a bakery that would give people their lives back. Food is such an important part of life, and an autoimmune disease or food allergy shouldn't take the joy of food from you. And it doesn't have to. Our promise is to fully satisfy taste buds without compromising health." At Kneaded Specialties our facilities are dedicated peanut, tree nut, and gluten-free, and our products are also available free of soy, dairy, and casein, (these are also allergies of mine). I know better than anyone that the right ingredients can be a matter of life and death. I began Kneaded Specialties for this purpose.
Kevin Crawford kitchen manager at T Rex Cafe -"T-REX Cafe takes you on a prehistoric adventure you’ll want to share with the entire family! Enjoy face-to-face encounters with life-size dinosaurs, hands-on educational activities, delectable food and phenomenal retail."
It's Fun, It's Free, It's Informative! Get Involved!!!
As Always, this is a free event but PLEASE register HERE.
Since this month we will be holding a special event, we will not be holding a regular meeting. We will have a SKYPE meeting the following evening at 9pm. Make sure you have a free Skype account and email me your Skype name to join the chat!!!
MAY
Speaking of webpages, notice that our "Recipes & Tips" page is now "Reviews, Recipes & Tips"! We now have our friend, writer Kathy Stump contributing as our new restaurant critic!!! Kathy will be covering family restaurants and checking them out to find how allergen savvy and safe they are. She has a food allergic son and has been writing about food allergy for several years. You can see more of her work at Suite101.com and KCparent magazine. Please check out her review on the Reviews, Recipes & Tips page!
There has been a lot going on since our last web update! I attended FAAN's Leader's Summit in Chicago and met many great support group leaders and learned so much! There were presentations from FAAN's outgoing CEO Julia Bradsher, Education & Outreach VP Eleanor Garrow followed by Breakout Sessions with presentations from Ginal Clowes of AllergyMoms and Nicole Smith from AllergicChild. There were training sessions on FAAN walks, Advocacy Training and Media training. Following the training were round table discussions covering the topics of support group membership, websites, topics and event planning. The entire event was inspirational and energizing! Feel free to contact me if you want to know more about any of these topics.
March Spring Fever!!!
The snow has finally melted and it's time to get out and have some fun!
Again this year the Royals are offering a peanut free suite at a discounted price. The first game offered kicks off FAAN's Food Allergy Awareness Week on May 8th at 1:10. Two night games will be available on May 17 and June 8th, both at 7:10. The final offering will be July 24th at 1:10. Last year was great fun. We want to support the Royals in their effort to make a peanut free way for our families to enjoy watching a baseball game. Tickets are $36. For more information contact Alex Janowiak the Premium Services Coordinator | Kansas City Royals p: p: 816.504.4434 Kauffman Stadium | One Royal Way | Kansas City, MO 64129 For an account of last year's fun, click here and scroll down to June 2010.
You've been asking for it and now it's here!! New for FACST this year is a monthly playgroup. Headed up by Jennifer Sullivan, FACST will be having a playgroup at Brian C. Potter Memorial Park, just inside Flemming Park at Blue Springs Lake. Click here for Jennifer's announcement with all the details! Also print out our new Calender of Events.
Vacation time is just around the corner and it's never too early to make a plan. We will start featuring articles from families sharing their travel experience sharing their food allergy journeys. Be sure to write us if you have a vacation experience that you'd like to share!!!
Speaking of articles- be sure to keep an eye out for our new resturant critic section comming soon!!
Feb GET ON BOARD WITH FACST!
In the past year , the food allergy community has made great strides. President Obama signed the Food Allergy and Anaphylaxis Management Act. State law in Missouri goes into effect requiring every school district to create and follow a food allergy plan. The KC Royals offered specially cleaned, peanut free suites at a discounted price for food allergy families for four games last year, and will be doing so again this year. FAAN held a successful FAAN Walk this last fall. There are many new products, services and organizations catering to the food allergy community.
LET’S KEEP THE MOMENTUM GOING!!! This is YOUR year to GET ON BOARD with FACST!!!
After taking a short break during the holidays and then an unexpected delay from the elements, FACST is BACK- better than ever!!
We have taken this time to re-shape, re-organize and re-energize! Our new format has a more event oriented focus. Instead of monthly meetings, we will alternate meetings with monthly events. In this way, members will have the opportunity to talk and share AND a chance to take part in workshops, symposiums and family events. Our meetings will follow a more laid back form, for all to share. Planned events will include; a healthcare symposium, a nutrition and food symposium, workshops aimed at communicating with schools, babysitter training sessions, kids counseling, Royals peanut free suite nights, a family campout and of course the FAAN walk. In addition, we will be participating in more community outreach programs for the public such as workshops and informational booths through MCPL, Parents’ University and various health fairs.
We need you! We need as many participants as possible to succeed! To better accommodate more members schedules, meetings will now be held the Second Saturday of each month at 10 am at Truman Medical Center Lakewood.
Join us! It’s Free. It’s Informative. It’s Fun.
Season's Greetings From FACST
The holidays are here again and this month we've got some real treats for you!
Thanksgiving Survival Tips From Kids With Food Allergies Thanksgiving is a holiday in the United States notable for overindulging on a large spread of traditionally prepared foods, many of which are laced with wheat, eggs, milk and other allergenic ingredients. A perfect holiday for many Americans includes eating a butter-basted turkey, creamy mashed potatoes, traditional bread stuffing and Grandma’s pumpkin pie - followed by leaving the table stuffed, loosening one’s belt, and then falling asleep in front of a football game on the TV. To read more click HERE
Another Fantastic Resource is Kids With Food Allergies FREE pdf booklet Thanksgiving! Celebrating With Food Allergies and Have Fun Too! Click Here to Get Yours Today!
We need your participation!!!
A new school year brings new schedules and a fresh look at what we do on a daily basis. FACST needs your help. Basically, we need you here. We need more people attending meetings. We can accomplish more- have more guest speakers, have social activities and provide more support.
Let us know what will bring you in. Different day of the week? Different time? Different format? Different offerings? We want to serve your needs.
You said you needed child care, and we listened. For the last three months, we've provided a safe, near by space for the kids to socialize.
We have big plans. We are participating in the FAAN walk. (click here for details) We are investigating a "FACST Fall Family Fun Weekend Camp". We have several speakers eager to share their advice/talent/products. But we are missing one big thing, YOU!
Here are a few Halloween Websites to help your family celebrate with fun and safe tricks and treats! SPANGLERS! Allergen free candies at your grocery store! http://www.spanglercandy.com/faqs/allergen-information
Allergic Living Magazine Halloween School Tips http://www.allergicliving.com/?p=163 Allergy friendly candy and treats http://www.allergicliving.com/?p=122 Food Allergy and Halloween http://www.allergicliving.com/?p=784 One family’s solution- The Great Pumpkin http://www.allergicliving.com/?p=165